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Our Mission
- The Spina Bifida of Greater New Orleans, Inc. (SB of GNO) is a
non-profit, tax exempt organization for the expressed purpose
- of providing services to those persons born with Spina Bifida and their
families, and to increase public awareness about
- Spina Bifida and its prevention. The Organization consists of individuals
with Spina Bifida, their families, and other interested
- persons united to enhance the quality of life for persons with Spina
Bifida.
- The association's mission is "to promote the prevention of Spina Bifida
and to support the needs of individuals with Spina Bifida
- and related disorders".
Our Vision
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At SB of GNO, we envision a future where all
individuals have opportunities to grow and thrive in an integrated society and
also where, supported by a diet enriched with folic acid, fewer babies will be
born with Spina Bifida.
Our efforts strive to:
 | advocate for availability and accessibility of appropriate, comprehensive
and coordinated programs of care and support available throughout Louisiana
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| promote more opportunities and choices for persons with Spina Bifida |
| mentor young parents and families with Spina Bifida children and also
emerging young adults with Spina Bifida |
| promote the medical, educational, vocational, social and recreational
needs of emerging young adults with Spina Bifida to healthcare providers throughout the state of Louisiana
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| foster a greater understanding of secondary complications and their
prevention, along with treatment and management of care |
| increase community understanding and inclusion, and enhance the quality of
life for persons with Spina Bifida |
| promote the daily consumption of folic acid by women in child-bearing
years or prior to pregnancy to reduce incidences of Spina Bifida |
| build public awareness about Spina Bifida |
| make SB of GNO an integral part of a network of support
organizations |
| establish SB of GNO as the primary resource for information on
Spina Bifida in Louisiana |
Programs and services reflect the
association's goals:
| To enable children, youth and adults with Spina Bifida to maximize their
potential for educational achievement, employment, independence and a healthy life.
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| To significantly reduce the incidence of Spina Bifida and related
conditions, |
| To enable families of individuals with Spina Bifida to receive care giving
support from each other. |
| To assure that individuals with Spina Bifida and related conditions
receive entitled medical, educational and vocational services. |
| To advocate for the acceptance, accessibility rights, inclusion, treatment
options, and well being of people with Spina Bifida |
| To advocate for appropriate educational, vocational, and community support
to encourage self determination. |
| To promote research for the prevention of Spina Bifida and related
secondary conditions. |
| eBlasts – eNews bulletins designed to keep
members more informed. |
Contact Information
- Telephone
- 504 737 5181, Julie
Johnson, Out Reach Coordinator
- 504 444 4132, Al Hitt, President
- Postal address
- SB of GNO, PO Box 1346, Kenner, Louisiana 70063
- Electronic mail
- General Information:
sbgno@sbgno.org
Webmaster:
alhitt@cox.net
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