Spina Bifida of

Greater New Orleans

serving all of Louisiana

07/23/14

2013 Camp Friendship

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Our Mission

The Spina Bifida of Greater New Orleans, Inc. (SBGNO) is
a non-profit, tax exempt organization for the expressed purpose of providing services to those persons born with Spina Bifida and their families, and to increase public awareness about Spina Bifida and its prevention. The Organization consists of individuals with Spina Bifida,
their families, and other interested persons united to enhance the quality of life for persons with Spina Bifida.
The association's mission is "to promote the prevention of Spina Bifida and to support the needs of individuals with Spina Bifida and related disorders".
 
Our Vision

At SBGNO, we envision a future where all individuals have opportunities to grow and thrive in an integrated society and  also where, supported by a diet enriched with folic acid, fewer babies will be born with Spina Bifida.

 

Our efforts strive to:

 

bullet advocate for availability and accessibility of appropriate, comprehensive and coordinated programs of care and support available throughout Louisiana
bullet promote more opportunities and choices for persons with Spina Bifida
bullet mentor young parents and families with Spina Bifida children and also emerging young adults with Spina Bifida
bullet promote the medical, educational, vocational, social and recreational needs of emerging young adults with Spina Bifida to healthcare providers throughout the state of Louisiana 
bullet foster a greater understanding of secondary complications and their prevention, along with treatment and management of care
bullet increase community understanding and inclusion, and enhance the quality of life for persons with Spina Bifida
bullet promote the daily consumption of folic acid by women in child-bearing years or prior to pregnancy to reduce incidences of Spina Bifida
bullet build public awareness about Spina Bifida
bullet make SBGNO an integral part of a network of support organizations
bullet establish SBGNO as the primary resource for information on Spina Bifida in Louisiana

 

 

 

Programs and services reflect the

 association's goals:

bullet To enable children, youth and adults with Spina Bifida to maximize their potential for educational achievement, employment, independence and a healthy life.
bullet To significantly reduce the incidence of Spina Bifida and related conditions,
bullet To enable families of individuals with Spina Bifida to receive care giving support from each other.
bullet To assure that individuals with Spina Bifida and related conditions receive entitled medical, educational and vocational services.
bullet To advocate for the acceptance, accessibility rights, inclusion, treatment options, and well being of people with Spina Bifida
bullet To advocate for app

ropriate educational, vocational, and community support to encourage self determination.

bullet To promote research for the prevention of Spina Bifida and related secondary conditions.
bullet eBlasts  eNews bulletins designed to keep members more informed.

 

   

Up Coming Events

=================================

July 21st to 25th, 2014

More info can be found on Camp Friendship page

 

 

Send email to sbgno@sbgno.org with questions or  comments
     
      Copyright 2013 Spina Bifida of Greater New Orleans

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This site was last updated 07/23/14